Update II: My readers are the smartest, most informed readers EVER! Your comments made me feel much better while showing me how little research I did on this subject. I was really upset that 2 new cases of PML happened that I don't think I took the time to look into it all, as I should have done. But thank goodness you had the calmness of nerves and clarity of mind to do your homework. All I can say is, bless your buttons!
Update: The whole infusion center was buzzing with this subject and the general consensus was exactly as the comment says on here. The most interesting part of all this was how many different ways people say Tysabri. Tie-sob-reee, Tay-sab-reee and so on, everyone sticking to their own favorite way of saying it regardless of how the other person in the conversation was saying it.
I have so many things I could talk about (as always) but right now I have to get this off my mind so I can move on. I was reading on the NMSS website that there have been 2 new cases of PML in people doing Tysabri. In Europe 2 men who had each been on Tysabri for over a year started having major neurological problems that were not consistent with MS. *Sigh* I had hopes that there would never be another problem with Tysabri and that I would spend the rest of my life happily on it; but now I feel like Tysabri is an endangered species. The men went through a process, which I can't remember the name for right now, to get all the Tysabri out of their systems and did a bout of steroids to try to lessen the attack. They had areas of major damage in their brains consistent with PML, and there is no known medicine to help combat PML. For a little while there, when it looked like Tysabri only brought about PML with the help of another immunosuppressent, the odds of getting PML became very small. Now they are back to about 1 in 1000. That doesn't worry me. I would rather get PML than not be on Tysabri, but I am afraid I may not have that choice. I am off to do Tysabri today, (damn the torpedoes!) and take my chances. In the words of Emily Bronte, "No coward soul is mine."
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