I didn't want to give this post a clever name because I want people out there who are in the same ship o' fools as me to be able to find someone else in the same predicament. Whether my evil plot (camera pans over to me manically laughing and rubbing my hands together)
will work remains to be seen...
The pieces of the puzzle are starting to fall together. I have had this back pain for over a week now and my kidneys are not behind it all (darn it! Should have known it couldn't be as easy as acute renal failure). What started as a pain in my back has slowly, insidiously, and evilly spread around my chest in a painful band that is ironically called "The MS Hug" -- a name that is a cruel attempt to make light of something that is not like any hug I have ever had or ever want to get. It took me a while to figure out that that is what is going on. I've never had this before and I had one heck of a time finding any information about it. I tried to find something about it in the Multiple Sclerosis Owner's Manual (not the official name) that I got from my local MS chapter shortly after diagnosis, but it only glossed over it and didn't go into any detail. In fact, I got the impression that it was just a tight band around the chest with no pain involved -- stupid owner's manual! I hauled out all the books I have about MS, which is too many in case you were wondering, and was able to get some vague answers that lead me in the right direction. I did a search on the Internet and tried all the "official" MS websites and again found glossed over definitions about this damn girdle that won't ease up. But the good news in this dung heap of a symptom, is that I did find good information from others with a way with words and having the same nefarious problem. My fellow MSers, I apologize for not coming to you first. I should have known "The Establishment" wouldn't know f*ck about sh*t when it comes to living in an MS wracked body. Am I coming off as angry and bitter? Good! Because I am! Pain has a way of making one cross and ready to be euthanized.
Anyhoo, on to my problem. I have this tight band around my chest, just under my breasts where my bra should be fastened but I can't wear a bra right now because it hurts too bad. It is an uber pins-and-needles sensation with stabbing pains down into my abdomen and lower back. My back hurts to the touch and even sitting here is killing my back. I have been taking hot showers to try and ease the pain and subsequently draining the hot water tank, much to my roomies pleasure. Heat is not my friend in general, but I am hogging the heating pad in an attempt to calm "The Hug." (My little sister uses the heating pad to keep her red eyed tree frog warm -- or did.) It makes me not want to eat anything because my abdomen feels too tight to put anything into it. I feel like I can't draw a deep breath because it is too constricted and if I try it only sends more shooting pains. It is miserable and underrated because this is a serious pain. The only good thing about it is that I don't feel my trigeminal neuralgia with so much pain in my back and chest. But instead of waking up with a hideous pain in my face, I am kept awake by this "hug" and made all the more irritable by my utter inability to get any rest. I already take an ungodly amount of Neurotin for my TN so I thought that would help all this girdling -- ha ha and HA! I am pacing the floor waiting for the time when my neurologist's office opens to see what can be done to give me some relief and I will not accept any brushing off of this new problem. She doesn't want me coming in there with a battling ram to get something -- ANYTHING -- to ease this pain. If she thought I was an obstinate pain in her behind before, she is going to get a huge surprise when she has to deal with me in pain that is reaching the 10 point on her scale o' pain. I'll keep you posted on whether she lives through this or not.
Love and kisses,
P.S. This may go without saying but I like to say redundant things anyway: I would love to hear how anyone else dealt with this problem and what worked for them. I am on the verge of chewing through the pharmacy walls if they won't give me some kind of pain medicine and helping myself to anything I can find. Ahh, the joy of MS! The gift that just keeps giving.
When To Get A Disabled Parking Placard
3 weeks ago