I would like to start a new topic on this here blog o' mine. I've had this idea rattling around my head for awhile and finally decided to do something about it. Bring me your tired and weary, lay your head upon my bosom and take all and any advice/answers with a huge grain of salt, as they are merely my own opinion, albeit very good opinions in my opinion. So, without further ado, move over Dear Abby! (Also, I welcome any comments that you would like to share, especially if you have better advice than me, which is very likely.)
I have a spot on my left foot that itches and buzzes off and on. This has been going on for a year. Now my left side has joined in with the itching. Two of the fingers in my right hand sometimes get cold and they ache. Any ideas? I haven't been to a doctor yet as these seemed like silly ailments. Any thoughts?
Dear Beautiful Jo,
My itchy spots nearly drive me mad. I dig up my skin in places, making me look like an even more diseased freak than I already am. The only thing that tames my itchy spots is Neurotin. It helps bring down the itch, soothes my aches and pains into a manageable dull roar, and even untangles my bunched up muscles, or the Periodic Limb Movements that steal my sleep and make me kick my legs uncontrollably. I too have the cold problem. My feet feel like frostbitten blocks of ice no matter how much heat is on them. I haven't found anything yet that has helped that problem, so I try not to judge the temperature of anything by what my feet are telling me. If there is something out there that helps with that cold feeling, I would love to hear about it. I get tired of my frozen feet, but after hearing about the opposite problem, ie the burning, I think I will take the frozen over the burning.
I have itchy spots in some of the most embarrassing and ridiculous places. I normally don't like to tell too many people about it, but it may be pertinent here. I have itchy bands on both arms, right above the elbow; my feet, in addition to being permanently frozen, itch so bad that I have to kick off my shoes and scratch and scratch sometimes, no matter where I am (like in a store! Making it look like I have raging Athlete's Foot); and I have the most embarrassing itchy spot on my left leg, slightly off to the side of my... delicates. I hate having to scratch that one when anyone may be able to see me do it, but sometimes I have to just dig in regardless of who may be observing me. When I really start to itch, I know my Neurotin is wearing off.
I hope this helps you.
Why can't you be serious? Multiple Sclerosis is no laughing matter!
Dear Beautiful Serious Sally,
I beg to differ. If I couldn't laugh at this disease and the things it does to me, I would cry. How can I take myself seriously when I trip over a dust mote on the floor? Or the time I fell, butt naked, because of a drop of moisture on the bathroom floor, with such a squeal of pain it brought everyone in the house on the run to see me crumpled, and did I mention butt naked, on the bathroom floor. How about the ataxia that makes me stagger and look drunk even though I haven't had a drink in years? There is plenty of humor there. It makes me want to carry a bottle of soda in a brown paper bag with me at all times, just for poops and giggles. Or my inability to see any details unless the thing I'm trying to see is inches from my face. Try going shopping for bloomers and burying your face into a pile to see if there are any you like, and then tell me that's not funny! It makes me think of that quote, "the first sign of being a grownup is the ability to laugh at yourself." I may not have the words exactly right, and I can't remember who said it, but I think of that often and find it to be very true. If being serious about MS helps you, by all means be serious, but I can not be serious about a disease that renders me ridiculous.
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