Now that I have Acorn with me, I have been trying to fill her in on all things MS. She hasn't lived with me since my diagnosis and hasn't spent large quantities of time with me since I became such a broken down old gimp. I've been giving her a crash course in all the things she will need to know if she lives with me -- good thing she is such a good listener to my good talker. Among the important tidbits that she needs to know are these gems:
*I'm tired. No, really, I am tired! As the day progresses, I get more tired and need to hold down the couch more and more. By afternoon I will have to balance my activities by rest, get something done, rest, try and do something else, rest, eat as much junk out of the kitchen until I need to rest, rest, I think there is still some peanut butter and cake mixes left... better get on those.
*I can walk short distances without too noticeable of a limp, but anything more than that and I will be dragging my right leg along. And that gets very tiring. I showed her how to do an arm for me the best way. My little sister has it just right; my mom grabs my arm (instead of letting me take hers) and walks so fast I get drug along behind her, great for energy conservation, bad for the knees of my jeans.
*I forget everything. I will forget what I was just talking about. I will forget what you were just talking about. I will ask the same questions over and over again and never remember what the answer was or that I have even asked that question already. I will forget what I was planning for dinner and what is in the pot that is burning on the stove. When I need to remember something, I tell whomever is with me so they won't forget and it will get done. I carry about 5 million little notebooks to write down things so I don't forget and it is VERY important that I carry them all in my purse, which resembles a suitcase more than a purse, and, yes, I must carry everything I own with me at all times. Why do you think I need to drag around my suitcase/purse? I couldn't possibly only take what I need, I must take everything.
*When I push myself too far, which I have gotten very good at listening to my body and slowing down when I feel my strength ebbing but it does still happen sometimes, I need to rest NOW! And it would be nice if you would drop grapes into my mouth while I repose like the goddess I am.
*I am showing her how to do my shots and explaining that even though she has to feel me up to make sure she is not injecting into an area that is still swollen from a previous shot, it does not mean that we have to take our relationship any further. I don't usually allow anyone to feel me up on the first date, but she and I have known each other for a few years, and even though I want to just be friends -- it's not her, it's me -- we can cuddle sometimes. She can do better than me and I only want her to be happy.
Of course I have been running her through all the ins and outs of what MS is and what it does and how it effects one, which is all that boring crap that, if you are like me, you are bored stiff with. She is a good student and interested in what it all is and is not, and she has the arm thing down just right so my jeans may last a little longer.
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