Guide For The Newly Diagnosed: Pay No Attention To The Man Behind The Curtain

And that man is usually a member of the general public spouting tired cliches mostly found on Facebook posts with cute kittens. You know, the kind of sh*t you see and think, "that is true... Ha ha! My ex slipped on the ice and broke his fat ass! That's the most uplifting post I have ever seen on here!" You are going to hear a criminal amount of stupid crap, useless platitudes and general bad advice. Refer to the good advice in the title of this post. Depending on the source and my mood I have different ways of handling these sages.

The Slow Blink

Some one just told you, "None of us knows what tomorrow brings!" and goes skipping off to take a jog before they make dinner for their family. You are dealing with an attack that has you staggering like a drunk and barely able to stay awake until dinner. Their words are hanging in the air... waiting for a reply... wipe your face of all emotion... now... b...l...i...n...k. It's true, none of us do know, but to say something like that when the odds for your tomorrow are sooooo much better than my tomorrow is really a poor choice of an empty platitude. On the way out of the store grab some cheesy quotes book so you will be better prepared next time, or can at least hit me with something I don't hear as much. I really like Benjamin Franklin or Winston Churchill is good too.

The Lost My Patience

I'm actually a pretty patient person, so when I do lose my patience, you pushed me pretty good. Grocery shopping a bit ago, a woman was using a motorized cart. I could not possibly care any less if someone is using a cart, wheelchair, cane, iditarod dogs, etc. She and her husband came up behind me while I was pondering which spaghetti sauce was truly as delicious as it claimed to be, when he loudly said, "EXCUSE US! She's in a cart!" I no longer cared about spaghetti sauce. I told him, "I don't care if she's in a cart! I have to use them sometimes too because I have Multiple Sclerosis!" I think I may have dropped the F bomb in there too because that kind of attitude really pisses me off. I wasn't blocking the aisle; it was earlier in the morning so it wasn't busy; and why should anyone roll out the red carpet for you because you are in a cart? I had my cane in my shopping cart and no one was walking in front of me loudly informing people of it. "Here she comes! She has a cane! Mush, you little peons! And some one grab her some spaghetti sauce because in all that brouhaha she forgot to grab some! There she goes! She has a cane!" 

The F*ck Stick

This is for when you have really, really pissed me off. You know that old adage "beware a patient man's anger," well I am that patient man. My mom HATES the F word. She hates it to the point that if you use it it has to be in the most extreme situations, and even then... Talking to her on the phone I slammed my finger in the door and took a big chunk off my finger, blood all over, and I said f*ck. My mom was more concerned about my language than my finger. My mother is what inspired this last one, and inspired it is! She really got me livid one day. I haven't been that furious in a long time; I was so angry I told her I wanted to beat her over the head with the word F*CK. I didn't necessarily want to kill her, so I wanted to get a foam stick and carve the word F*CK (I would censor it for the kids' if they saw it) into it to beat her with. For non-human uses I want to get a punching bag to hang in my garage and go out there and beat it with my f*ck stick when I get really mad. I have an old cane with F*CK written on it and there really are not words for the release I get from beating on an old pile of rugs in my basement when I feel the need. 

I know -- or at least I think -- people mean well, but sometimes I wish they would mean well somewhere far away from me. 

Things I'm Tired Of

In order

1. Cluster Headaches

These are the worst thing I have ever experienced. Period. Period again. Bar none, NONE. They make MS look like a fun and lighthearted day in the park. I am so tired of being in the grip of them, of being scared of getting one while in public, of being a prisoner to them. I'm taking a new medicine now that has really helped bring down the severity of the attacks. I still get a few breakthroughs that bring me to my knees, but for the most part it is helping. God am I tired of clusters.

2. My Ex

That man is going to be the death of me. And if that is the case, I better be the death of him too. We get along for a little while, then he pisses me off. I stop talking to him. He leaves me alone for as long as he can stand it, then little by little he starts texting me again until I cool off enough to start responding to him. We talk for a little bit until he pisses me off again, and then I ignore him and we wash, rinse and repeat many, many, many times. He pissed me off early in the summer, we were talking by the time I went on vacation in August. I sent him a "glad you're not here!" post card, and I meant every word of it. Sometime in September he pissed me off and I have not responded to any of his texts since. He has tried every tactic to get me to respond and I have come close, but I'm not ready to put up with his smug jackass self that makes me regret ever talking to him in the first place. Yesterday he was desperate because he was "in full hunting mode and I knew what he needed. All seriousness. No B.S. Just give him what he needs and that's all." What he needed was me to text "big bucks no whammies." That's it. That is his superstition about hunting. If I don't say that to him (or text it, whichever the case may be) he won't get a big buck, he will get a whammy. And it has to be me. I used to say it whenever he was going hunting and he said that it brought him luck, now it's my curse. I told him that I am not talking to him again until hunting season next year, I'm not joking. Big bucks no whammies. 

3. Grocery Shopping/Being Mother Hubbard

I truly do not know which is worse because they both suck. I hate grocery shopping. I get so worn out from it and then don't get much else done the rest of the day. I make menus, I make a list, I buy fruits and vegetables, and try to keep a good selection of foods in my house, but many of those things get eaten fast or need to be eaten fast which then makes me Mother Hubbard again. I don't have a lot of junk food around so my cupboards really are bare. I need to throw away some old cereal boxes but, damn!, that will only make it look worse. I know it's good to not have a lot of junk food, but when you are really tired, a little junk food sounds so nice and quick and easy and... nice... mmmmmm....

4. Being Startled By The Sheriff At Your Door Looking For An Old Neighbor When You Look Ridiculous!

I'm working on some different projects around here so I'm wearing old clothes and a bandanna on on my head. I'm typing away when a sheriff knocks on my door officially startling me and horrifying me that I got caught looking like this! As soon as I hit "Publish" on this I'm heading upstairs to take a hot shower and put on pajamas. Instead of getting caught looking like a dumpy old housewife, I could have at least got caught looking like a clean dumpy old housewife. 

You know what I'm not tired of? Right now I'm enjoying a version of Swan Lake from the 60's. The technicolor! The hairstyles! It's like Swan Lake meets Charlie and the Chocolate Factory. It's so gaudy and bright and fabulously terrible that I can't tear my eyes away. I just wish I had some food to eat... maybe tomorrow I will go grocery shopping if I can't find anything else to do. 

Unforgivable

I'm a pretty forgiving person in general. I don't have too many things that are absolute deal breakers, there are a few, but not many, and even then with the right apologies etc. they can usually be worked out. This morning I ran into a total nonnegotiable. At 3 am almost to the minute, I was woken up by my cluster headache. This is the usual time so I just glance at my clock to make sure we are on schedule and to track the starting time so I know when to expect the end time, then play the waiting game. I recently started new meds so the severity of my attacks has really come down, so much so that I can play games as I wait out the 2 to 2.5 hours until the hot sledgehammer is done hitting me on the left side of my face/head. Sometimes, just to shake things up, instead of the hot sledgehammer to the side of my face, the cluster will take a pvc pipe and try to force it into my eye socket with the sledgehammer. It likes sledgehammers because they can really get some force behind them and they cause more widespread pain. But the cluster headache wasn't the problem, nor was the fire that was burning in my legs, thanks to my MS that wanted to remind me that it was still there in case I forgot, because when clusters are in town, I don't notice anything else. A pack of wild rabid possums could be gnawing off my leg and I wouldn't know it if I was having a cluster headache at the same time. But worst of all, stuck in my head was that Popo Zao (or however you spell it) song that Kevin Federline did. What in the name of tarnation was that song doing in my head, actually, just that one line, "let me see that popo zao." When was the last time you even thought of that song, or remembered that he did it? I can't remember the last time I thought about him, or the fact that he wanted to be a rapper and tried by making that one song that I think I listened to maybe twice on gossip sites years ago. I tried to think of every catchy song I could. Every song that when I think of it, it is stuck on repeat in my head for the rest of the day, all to no avail, even now that one line keeps popping up. I'm so ashamed. I'm ashamed that somewhere in a wrinkle of my brain, I stored a line of that song for years and it popped up to keep me company at 3 am along with my burning eye and legs. Why couldn't my MS attack that area of my brain? It's probably too busy destroying all my happy childhood memories to worry about silly things like useless snippets of obscure songs. It's unforgivable. 

I'm bored stiff with MS, literally and figuratively, so I am going to start writing about other subjects that are of interest to me or going on in my little world. I just wanted to give the heads up so no one is surprised if they come to a MS blog and read about how my dog threw up under my bed, ate it, threw up again, and then I threw up. These are things that are so exciting that I could not possibly keep them to myself. Now I got to go get into the shower because if I get into the shower just before Princess's alarm starts going off, she will get out of bed faster than she ever has to come galloping in to make sure I don't use all the hot water, how long am I going to take, why couldn't I wait, etc. etc. and that is just too much fun for me to resist. 

Birthdays, Anniversaries, and Architechture

Today is my little dog's birthday. A day of great joy and celebrating in my house. A celebration of 3 years of love, joy, and happiness! (Because it is his birthday, we are going to ignore some of his more irritating habits, like not waking me up at night when something is knocking on his back door. Love those morning surprises.) He has an under bite that makes his bottom lip stick out and I swear he dangles it in front of me hoping I will trip on it and cover him with kisses, all while pretending to want to get away from my loving embrace. I think he is just trying to save face in front of the other dog, that is why he runs away from the kiss storm as soon as he can wriggle away from me, but he has a head that is as soft as a velvet painting of Jesus and I cannot resist trying to cover it with layers of kissies. The other day I came home to find that my dogs had ransacked my potatoes. There were 4 of them scattered around the house. One in the living room, one in the kitchen and two in my bed. I threw away two of them and let them keep the other two because they were enjoying them so much (and had eaten half of them). They kept bringing them into bed with us and I kept pitching them back out. We kept up this charade until I gave up, as they knew I would, and I went to sleep with 2 dogs, 2 potatoes, one rope toy, 2 books, my 2 remotes, and me all sardine-canned in to a full sized bed. I should be embarrassed by how much I spoil my dogs, and I am a little, but I love those little sh*ts so much and I have never been a good disciplinarian. I set his birthday on the 5th on purpose, because I wanted something positive the day after something negative, which is the anniversary of my being diagnosed with MS.

Eight years ago yesterday I got the news that I got the MS from sitting on an infected toilet seat, probably at a store somewhere. I really should use those paper seat covers, but I didn't think I would ever contract anything. How naive I was, putting my bare arse all over toilet seats wherever I went, never for one moment stopping to think of the possible consequences! Nah, I just had to give the public what they want, a reason to treat me as a person with a communicable disease. The thing about having MS for this long is getting over having MS at all, whether that is good or bad, I leave to each person to decide for themselves. I'm not saying I don't hate it or get frustrated by it, but I no longer rage and shake my fist at my crappy immune system. In fact, I am not even doing any of the DMDs anymore. I remember in the early days after being diagnosed, whenever I heard of someone willingly not doing any of the DMDs, I thought they must be crazy. I never thought I would be one of those who stopped clutching my sheets with sweaty palms at night, worrying about not having that 30% (more or less) reduction in disease activity or whatever, but here I am not caring. I was getting so bad about giving myself my shot that I only did it once or twice a week, just to be able to show my family an itchy red welt to prove I still was doing my shot, kind of. I talked to my neurologist about it, we tested me for the virus (is it JCV, JVC?) that excludes you from taking Tysabri. I tested positive (good thing I quit doing Tysabri) so that was out, and she and I agreed to stop with the facade of doing Copaxone because there is no benefit to taking it so little, and just waiting for some of these new meds to make their ways down the pipeline. Now I have 3 months of Copaxone chilling out in my fridge, waiting for a good home. I would like to find someone who is really struggling with being able to afford it to give it to. It is house broken, crate trained, and ready to cuddle with its forever family. If interested, contact Blindbeard at Blindbeard's MS Medicine Rescue.

Lastly, I have a few words to say about architecture. The other day Princess asked me how it feels to play the same game that little kids play. She was talking about my enjoyment of Angry Birds. Yes, it may seem like a game for little kids, but that is only if you look strictly at the graphics. Those damn egg stealing pigs are architectural geniuses! Their structures are marvels of engineering! If we could build stuff as ridiculously strong and stable as they do, no tornado or hurricane could ever destroy any home or building, EVER! There is more to the game than just flinging birds at those irritating, albeit very cute, pigs. It takes some finesse and figuring to bring down those structures. I get so angry at those pigs, I swear I'm going to have bacon for my next meal. Princess hates when I say that because it makes her hungry for bacon. I'm just hungry for revenge and my eggs back! The only complaint I have, other than their building skills, is how they get black eyes and lose teeth. It makes me feel bad, but then they smile when I don't beat the level and I swear I'm having bacon as soon as I finish that level and go to the store, or they give me my eggs back, whichever comes first.

Critique

As if I didn't suck enough, I now have cluster headaches. I don't know if I wrote about my eyeball pain last year when it started, but I sure didn't hold back around here. I have done all the scans, went through too much none-too-cheap medicines trying to treat a sinus infection that didn't exist, pondered the possibility that 3 times EVERY day at the same time someone took a sledgehammer to the left side of my face/head and for some reason I didn't notice them sneaking up on me, because we all know how much that happens, and finally when all those possibilities were ruled out, cluster headache was the only thing left. I figured it out by myself, because lets face it, the doctors most certainly weren't awake with me in the middle of the night trying to figure out how that person with a sledgehammer got me again. I was looking up how painful gout is and stumbled across a list of the worst pain people can have. Gout is on that list, that list that has as the number one most horrid pain cluster headaches with a description that was exactly what I was going through. Since they hit at the same 3 times every day, I prepare for them as well as one can. I take pain meds at night that make me fuzzy around the edges and make my reading comprehension so low that it is pointless for me to try reading, so I have been watching movies. I am finally getting around to all those movies that I have been meaning to watch for years (and years and years) but just never got around to. I'm trying to stick with classics and any suggestions you may have would be greatly appreciated. Here is my critique of a few.

The Godfather

I have been meaning to watch this movie for years but never wanted to take the time to do it. I don't do good with too long of movies because I get restless unless they are excellent movies. The Godfather, as I'm sure you know, IS excellent. I have watched it so many times, and even now am thinking about getting it from the library again today. My first book is going to be "Things I Would Do Sexually To A Young Al Pacino". And there would be sequels. Many, many sequels. When my eyes first clamped on to him, my pants burst into flames and every time I see young him again my pants burn up. Too bad that I wasn't even born yet when that movie was made. Such a damn good movie and such a damn hot man. That is the definition of win-win right there!

Seven Brides For Seven Brothers

Have you seen this movie? It is so ridiculous yet so much fun and the songs get stuck in my head. Even talking about it I get, "Bless yore beautiful hide, wherever you may beeeee!" playing in my head. I have watched is several times and have enjoyed it each time, damn it! It amuses me that women back when that movie was made sang at such a high pitch. One minute they are talking in a normal voice, then the next they break out in a song in a pitch that can shatter glass.

Some Like It Hot

I LOVE LOVE LOVE this movie! I am going to have to buy it because I have renewed it from the library 3 times and that is the limit. Jack Lemmon as a woman is so friggin' hilarious, and how can you not love Marilyn Monroe in it? She is so cute and I love how she has curves, she's not built like a 12 year old boy like women in movies are now. The pointy boobs are really pointy and you can tell it's a different time by how the men pat the women on the butt and the comments they make that would get them in trouble these days. When Jack Lemmon gets engaged to that man is my favorite part and I have watched it and laughed at it over and over again.

I have more that I will add later, and, like I said above, I am open to any suggestions. There are a few that I really want to mention but I don't want to not give them the full paragraph that they deserve. (If there is anyone who is interested, I can talk more about my cluster headaches, or if you want to tell me about yours, that would be great too. I would love to hear how you deal with it.)

Happy Birthday To Sugarbowl

The main reason that I have not been blogging is because I feel like so much time has passed that I need to bring myself (and any readers I may still have) up to date. Honestly, the idea of having to bring myself up to date makes me want to go to bed with a hot toddy and an ice pack for my head. Not that there is one thing of any real interest, my divorce was finalized in July, I'm still a gimp, my sciatica is still a hot knife stabbing my right butt cheek/lower back, and yet I still feel like I should deal with these issues before moving on to new ones. But in honor of Sugarbowl's birthday, and my deciding to just start from where I am and pretend that I slipped into a coma for the last few months and just woke up from it, I am going to act like we were just talking yesterday, and here is what's going on today.

So, Sugarbowl is 34 today and you would think that 34 is the most ancient age ever, that we would have to saw Sugarbowl in half and count her rings to ascertain her age, then do some carbon dating just to be sure. Maybe if she and I were not 4.5 years apart, I may have an iota of sympathy, but I don't. To a woman who is 4.5 years older, I can't bring myself to cry into my pillow over her hitting the big 3-4. She and I both had to have our driver's licenses renewed this year. Why is it so hard to take a decent picture for those things? Do they do it on purpose so that you don't want to get pulled over and have to show that picture to ANYONE UNDER ANY CIRCUMSTANCES, thereby making you are a law abiding citizen? Since she and I both had to go through that hideous event this year, we have been debating whose picture is worse. Spoiler alert: Mine is. But let us start with hers.

Hers

Imagine if you will, a round, white face framed by about 14 chins, a luxurious blond comb-over-looking hair don't, and a look on the face like they just ate a stink bug. They didn't just, "GULP! I swallowed a stink bug!" They chewed that thing 20+ times and savored every bite, then CLICK! here's your driver's license that you get to carry for the next 5 years! She called me and said she wanted to cry and that she would pay me $100 if I could honestly say that mine is worse. (She refuses to accept my arguments regardless of the evidence staring her beady eyeball to beady eyeball, and steadfastly claims hers is worse. She still owes me $100.)

Mine

I would like to pretend that I don't have a driver's license instead of admit that that is supposed to be me. What a sick joke! And the lady had the nerve to lie TO MY FACE and say that it turned out pretty good. I don't even want to think about what I must have looked like to her in person for her to open her mouth and fart out such a lie. But I digress. In my picture my hair is a curly mess that is flat on one side and caught in a wind tunnel on the other. My face looks tired and old, like I spent the last 38 years servicing men in a back alley for crack money. But all of this is nothing compared to my skinny, stingy, dried up old turkey leg of a neck. What was I craning my neck for? Did I want to see how long and stringy I could make it look? It's so horrible that I keep it covered at all times and  live in fear of someone needing to see it.

Even though it is her birthday and I should give her this day to have the worst driver's license, I can't honestly say that hers is worse. I'm going to go over to her house and clean, but I cannot lie and say that 14 chins are worse than stingy, dried up turkey leg necks. It's a toss up at best. There are no winners in these situations. Only losers, and there are 2 victims of the DMV right here.

It Better Be Coming Around The Mountain

I'm so crusty and gross. I am going to be crusty and gross until Lord Lortab kicks in and I can stand upright without a hand on my back, grunting and shuffling along, like my ancient neighbor. Once I can stand, I'm taking the longest, most luxurious shower ever had by man or gimp. I'm going to scrub and condition and pumice like there will be someone else in my bed besides me and the dogs tonight. As it is, I feel my sciatica but not my lortab yet. And I still feel how crusty and gross I am. I have been working on restoring my bathroom floor (it dates from the 1880's) and it requires a lot of scraping and dust and particle flinging. Many nose blowings to see how black my boogers may have become in the 10 minutes since I last blew my nose. Many gouges and cuts on my hands. A blister on my left palm that burst and yet keeps oozing. Countless splinters in my poor arse. Glancing down after that last sentence, I saw my fingernails. Add them to the list of things that are not attractive.

When I realized that my pain had taken over my ability to work, yet my pain meds had not yet given me the ability to lie down on anything I value, (this chair is from Goodwill) I decided to visit my poor ol' neglected blog. I keep telling myself that I need to get back on here, yet I feel like I have nothing to talk about. The only things going on in my life are things that are far too mundane and boring to talk about. Then a slide show of past blog posts plays through my mind and I realize I built my reputation on the mundane, inane, and boring. (I wanted another -ane there, but couldn't think of one that would work. Bane? Candy cane?) I have a few things I've been meaning to write about brewing right now. As I think I'm starting to feel the beginnings of pain management, I'm going to have to go and grab a very comfortable, very ugly, very sleep inviting pair of pants and shirt. I have a hot date with a pumice stone and a heating pad tonight. All this excitement on a Thursday too. Just imagine what my weekends must be like and then you will understand why I'm too busy to blog, I have the softest feet this side of the Platte river.

How To Lose 200lbs Of Ugly Fat

It is called Divorce. You may have heard of it. You may have already used it, successfully. You may even recommend it to friends who are wanting to lose their own mass of ugly fat. It is a painful, yet oddly freeing, diet. I am currently on this particular diet, needing to lose those last stubborn 200lbs because they are annoying, irritating, frustrating, discombobulating, infuriating, and, worst of all, tenacious. The only good thing about this mass of fat is how easily I can irritate it, having known it for 12+ years now, I know what buttons to push to make it just as frustrated as me.

We finally decided that it was time to do this. Actually, he was pushing for it because the woman he was seeing, who turned out to be a real peach but more about that later, kept asking him how his divorce was coming along. Silly man, thinking with his twigs and berries instead of his brain, tried to work out a plan for he and I to get together and see an attorney to hammer out a deal and get this whole thing rolling. He has been so gung ho to get me there and pin me down (sadly, both ways that can be taken are accurate) that it made me suspicious. So this woman went and done got herself her own attorney. Said mound of ugly fat was soooo happy about that, he yelled, hooted, hollered and boo hoo-ed to me about it for a good half hour, telling me how much he hated me and amusing me very much. We hung up, I went back to my book, and 20 minutes later he called me back, considerably calmer, to talk about it. Because neither he nor I give a hoot about the other's way of seeing it, we just stop as soon as we catch ourselves starting to try to explain how we see it. It's pointless. At this point, we cannot sympathize with the other.

I was surprised that he called me back so quickly. I figured he would be digging up his jar of pennies and moving them to a new spot. But he wanted to call me to sing, "I just called to saaaaaaay I haaaaaaaaate youuuuuuu!" at which point we both laughed and started changing love songs into hate songs. Don't get me wrong, we are both brimming with hate for the other, especially as it could have been so different if we had just made some different choices along the way. He is so irate with having to divide up the marital assets/money, that I can't resist messing with him. Case in point, I offered to go halves on a cabin with him once this is over. I think he popped a few blood vessels over that one, but it helps me deal with the stress of this all if we can at least joke about it a little. Like him telling me that if we can work out a deal and not have to fight this out in court, he might be willing to not delete my number and still be my friend. Gee, how can I not be thrilled with that offer.

Lastly, this wonderful woman he was dating turned out to be seeing an ex of hers on the side. She has turned out to be the gift that just keeps on giving because it seems the whole town, except my ex, knew about it. So not only was she cheating on him, she pushed him into getting a divorce when I would have been content to just stay separated forever. Instead, he decided that he really wants to have to give me some of our marital pennies. The moral of this story, if it ain't broke, don't fix it!

What Color Is Swamp Ass?

It is imperative that I know the answer to that burning question because I am trying to draw the Swamp Ass Swamp and can't seem to find just the right color. At first, I was drawing the swamp as the starting point for a game board to mark progress for my little sister, who has just started a vet tech program that is accelerated and promising to be an intense next 2 years. But then things took a turn that I was not interested in them taking, and now I find myself in that swamp with Sugarbowl, trying to navigate my way to the finish line. Why did I have to make such a long path to the finish? It wasn't so bad when I wasn't on that path with Sugarbowl -- I don't mind others' suffering, only my own -- but now all the obstacles that I have to go through seem very obstacle-y and long.

Before I go into why I am now a player in that game, let me give a rundown of the board itself. I took Cookie Monster and Burt out of my Walk Along Sesame Street game, cut out pictures of my face and Sugarbowl's, and stuck them over their faces. I am Burt and she is Cookie Monster. We start out mired in the Swamp Ass Swamp, ride the Beginner's High roller coaster, which then plunges us into the Homework Ocean. From there we must navigate our way through the I Have To Stick My Finger Where forest. I'm looking forward to that forest strictly to enjoy Sugarbowl having to lift tails and insert her digits, and hearing how she deals with it. And that promises to be a great story, she having the most sensitive gag reflex of anyone I have ever known, and anal glands being the worst thing I have ever had the displeasure of smelling. From there we will mosey into the swirly twirly Slumpy Mountains. They being so swirly and twirly one must go slow through them, hence the hideous slumpy-ness of them. I fear those slumpy mountains because I really hate the slumps. If we make it safely through those, we enter the dark tunnel of Is There A Light At The End. If we can find the light, it is the light of our goals. It's going to be one heck of a journey and I most certainly was not interested in traversing this path, but traverse it I must, because. . .

I found out earlier this month that my ex has started dating someone. The shock of that put me into a pity party in the middle of the Swamp Ass Swamp. It's not that I begrudge him dating, it's that I want to be able to go out and do those kinds of things that can result in meeting someone, instead of turning into a pumpkin at the hour when most people are gearing up to go out. And then my pity party really got rocking and rolling when I started thinking about who could possibly want to be with me. I have no money, no energy, but plenty of MS that promises more fun in the future. When I was saying this to Princess, she came and put her arms around me, told me that she wants me, and that she loves me more than I love her, which is not possible, but very nice to hear anyway. I have to be 100% honest and admit that the hurt of him moving on is at least equal to all the other hurt from not being able to go tear up the town myself. Why does someone getting over you hurt so bad? And why does it mire me so deep in that swamp? At least I have a game board to track my progress to my goal of. . . not sure what my goal is, but I will let you know when I figure it out.

Today Is The 6th Day Of The Rest Of My Life

My new life as a non smoker. That's right, I did it! I quit smoking 6 long, hard, stressful, frustratingly slow, days ago. Days where I had to just hold on and know that tomorrow would be a little less horrible than today had been. Riding out cravings that had me gripping white knuckled on to anything near me. Trying not to be too bitchy with anyone who had the bad luck to come in my path. Reading to rags 7 Steps to a Smoke-Free Life, which is an excellent book for any of you who may need a little help along your own obstacle course of quitting smoking. In fact, that book helped me not fall off the wagon during a very bad time in my house right now. It recently came to light that Princess has not been handling her stress in a healthy way: She has been cutting herself. Now, in case you missed it, for all my crabbing about her bitchy ways -- and they can be very bitchy -- that little girl is the light of my life. I would die for her without even having to think about it. She is the reason I'm still on this planet, because she is still on it and I know I can't leave her until she no longer needs me. She and her mother have a very rough relationship, to put it mildly. Very mildly. I know that somewhere under all the hurt, misunderstanding, and loads of hate they have for each other at times, there is a drop of love. It may not be much, but at least it is there, and I hope that someday, when Princess is older, they can try to build a relationship of sorts, because this one is not very good. They are such oil and water it stresses me out sometimes trying to keep the peace around here. Sugarbowl's Borderline Personality Disorder makes things so rough, especially when she has not been taking her meds (which she has not taken for a while now) that it can be a lot of work keeping her from going over the edge about a perceived slight. If you have ever dealt with some one with BPD, you know how incredibly difficult it can be. When her BPD is fired up (it seems like she is good for awhile, then it breaks down and she is ultra sensitive and ready to take everything the wrong way and go into a HUGE RAGE over it) I feel like I have try to keep their dealings as minimal as possible. I try very hard to say things with as little negative inflection in my voice as possible, and if she still takes it as an attack, I have to hold back my own temper, and explain that she has misunderstood what I was really saying. And even then there are no guarantees that it will stop a rage. They will cling to what they think you meant, regardless of what you did mean, and fight with you about how they took what you said. It does not matter how many times you explain that that is not what you meant, they have their BPD up and can't be rational until it calms down again.

In all this BPD mess, I have a voice because I can lose my temper and throw down with Sugarbowl if she pushes me too far, which is saying something because I am very slow in getting to that level of anger. Princess can't say a word, or even twitch a facial muscle when her mother gets angry at her, and that repression is coming out in the wrong way. Communications came to a screeching halt for a few days because Sugarbowl was angry at me (and indirectly at Princess too) because I told her that Princess is cutting herself because of her mother. I should have made it more clear than that because Sugarbowl took that to mean that it is her fault, which is not what I meant. I meant that the problems she and her daughter have are not being handled in a healthy way, and I was trying to give her a heads up before Princess goes to counseling (she has an appointment) and she hears all this from someone else. I'm hoping that we can get through all the ugly that is on the horizon for us and come out the other side with some healthier ways of dealing with each other. Sugarbowl is going to look into counseling, but I would rather she take her meds on a regular basis, if I had to choose. All the counseling in the world is not going to change how she acts when in a BPD rage. I accept that she has Borderline and gets angry easily, but I do not think that is a free pass to do and say horrible things to people and not be held accountable for it. She may not be able to control the shortness of her temper, but she can control the words that come out of her mouth and her actions when angry. Princess does not have the luxury of being able to stand up to her mother like I do, so I have to run interference when Sugarbowl is raging. Right now Sugarbowl is upset about being told that Princess is hurting herself because of her mother, and doesn't want to say anything to Princess in case it adds to the problems she is having -- also as a passive-aggressive way of punishing Princess because her feelings have been hurt because she doesn't want to admit that she has hurt her daughter that deeply. I am the go between and the tension in this house is through the roof. I would rather we all not talk to each other than have any raging fights. As stressful as not talking is, the rages are a bajillion times worse. I think I deserve a HUGE pat on the back for not starting smoking again in the midst of all this crap. But I already broke my arm patting myself on the back, so I'm good. Besides, my focus is on Princess, and knowing that she is going to need me for some time to come makes me want to quit because I'm going to need all the time on this earth that I can get. That is helping me resist the sweet siren call of cigarettes. And what a sweet siren call that is! Darn you, cigarettes! Why do you have to be so delicious?! I look forward to the day that I no longer enjoy the smell of cigarettes. Pray for me.

Gonna Pound This Out Even If It Kills Me!

And it just might. With all the laptops gone to technology hell, we have been reduced to using this old behemoth of a desk top. I'm glad we still have a computer, but, dagnabbit!, does it have to be such a monstrous ancient dinosaur? It takes up my whole room and heats it up by about 50 degrees. Good thing I keep my bedroom so cold, so now it is about 70 in here. And don't even get me started about everyone junking up my room with all their crap! Every day I pull out cups and food wrappers, I try to organize all the papers they leave all over, and resist the urge to practice some redrum on their arses. I've been using a laptop keyboard for so long, this old, stiff keyed keyboard seems harder to use than I remember them being. It makes me think of typing on an old typewriter, where you have to really hit the keys for them to work. I only have this decrepit old computer chair that you have to balance your weight on very carefully, or it will dump you out because the back is no longer interested in supporting anything, especially fat hags who bitch about it. Okay, moving on.

We all were sick for about a week there. The joy of the flu makes me question my decision to not get a flu shot this year. I can always come up with a plethora of reasons to not do it, but when good flu bugs attack, I can't remember any of those reasons, besides me being an idiot. Speaking of good reasons, I have been fighting against doing my shot, because I can think of a veritable plethora of reasons to not do my shot. I'm so tired of needles and shots and itchy injection sites, oh my!, that I am starting to think there is something to be said for going Secondary Progressive. When I mentioned this to my family, it went over like a herd of lead balloons and started a fight that will rage until I no longer have to do any shots. I have not been good about doing my shot every day, and even skipped as many as 4 days a few times. It is getting to be that time that I am scheduled to reorder, and I still have a whole box left. I am pondering whether I should tell them that or just keep it to myself. If I keep up this futile resistance, I'm going to amass a ton of Copaxone that I DO NOT want. Due to the fact that I am not the fighter my mom and sister are, I'm going to have to keep half assing doing my shot, because they are keeping a sharp eye on me to make sure I am as lumpy as I should be if I'm doing my shot everyday. In winter, being lumpy is not as bad, but in the summer, it SUCKS! Has anyone else on Copaxone noticed that the lumps get worse in the sun and heat? I go to the beach and become a mass of distorted injection sites that swell and disfigure my body. I'm not interested in attracting anyone, but I certainly am not interested in repelling everyone. Contrary to popular belief, I do have a few standards, they are just well hidden.

Until the day I can retire all needles, I'm going to be a big pin cushion, like one of those tomato pin cushions, which would be a lot cuter than the lumpy body I am. Ah, dare to dream of no longer having to do any shots. . . The sweet, sweet siren call of Secondary Progressive is hard to resist. (For the record, I know going Secondary Progressive is serious, but so is my desire to not have to do any shots anymore. Although the treatments for SPMS are pretty crappy, too. I've done Novantrone and that is an injection that I REALLY do not want to do again. Good ol' MS! It really knows how to suck the joy out of life.) Now I have to go avoid my shot. Toodles.

Why Am I So Slumpy?

I just can't shake the slumps right now. Is it holiday non-cheer? I do tend to get that a lot, especially when thinking of all the things to do to make it a good holiday for others. Is it the nagging feeling that I keep churning out rugs and forcing them onto people and then suspect that they may not really want them are are just being nice? That's silly! When have I ever cared what others think? They will take my rugs and keep being nice because I have no intentions of stopping until we can all play the Princess and the Pea on piles of rugs instead of mattresses. Maybe it's MS related slumps. Just when you think you are coming to terms with this disease, it pulls out something nasty to remind you why it is so hard to accept it. And am I the only one who gets worse in the winter? It seems most of my attacks have been in the winter, and my symptoms get worse in the winter months, too. My TN first kicked up in January a few Januarys back, and now I dread January 'cause I don't want my TN to get any worse. My hug first started in March, and now March is a worrisome month for me. I don't want my hug to get any worse -- even though some days that is hard to imagine, but MS has a very creative mind and can be very devious. It is best not to underestimate its diabolical-ness. Maybe it's because I can't get any sleep yet am still dead tired all the time. Oh, MS, why must you be such a devoted minion to Satan? I've been up for longer than I care to admit. I was falling asleep on the couch last night, so I figured I would get a good night's sleep. I had taken a muscle relaxer because my hug wanted to snuggle, so sleep and I should have skipped hand in hand for 8 hours at least. Har dee har HAR! I turned off my light at 9:30 and woke up at 2:30 am. In those few hours, my bed turned into a slab of concrete that made me ponder getting a pile of rugs to sleep on. Even with a pea hidden in them, they would have been more comfortable. I forced myself to lay there until 3:30 -- my new 4 am, which used to be the earliest I would get out of bed -- then bitterly raised the white flag.

The day is yawning open in front of me with the promise of nothing to do to make time move along, little doggies. Sure, there is plenty I could/should do, but who wants to do any of that? Not me, that's for sure. I'm far too slumpy to find any interest in anything. That's not 100% true. I do have a deep interest in Mystery Science Theater 3000 right now. If anything can help the slumps, it is that show. It is the only thing I have found that gives me any relief, and with so few side effects, too. Sore cheeks and chest muscles from laughing are a small price to pay for the slumps to recede for a bit.

Grudges

I don't have too many grudges, not being a person who can hang onto anger for very long. That and I have a thing about excess baggage. Carrying a grudge can get heavy, and I'm too lazy to want to carry anything heavy for very long. But for all my high minded words, I have 2 grudges that I am not quite ready to let go of.

Rebif

That's right, I have a grudge against Rebif because it happened to be in the wrong place at the wrong time. Or was it diabolical enough to put itself there? I'll let you be the judge. Right after I was diagnosed, I didn't want to read anything more about MS because everything I had read about it up to that point was not anything I wanted to hear. I wasn't ready to research any deeper than the most basic information, and even that was too much. After a period of avoidance, I decided to try reading a magazine I had gotten in the mail, figuring it wouldn't be too overwhelming. I took the magazine into the bathtub with me and got trapped in the tub with a magazine that turned out to be one long advertisement for Rebif. I wanted to read about MS and the different treatment options out there for me as I was still trying to decide which medicine to go with, but I obviously got a magazine that was funded exclusively by Rebif. I stalked out of the bathroom, and as soon as my foster daughter and husband saw the look on my face, they grabbed some popcorn, propped their feet up, and sat back to watch the show. I threw the magazine against the wall, was unsatisfied with that so I threw it into the fireplace, and ranted and raved and frothed at the mouth about how it told me nothing about MS, only propaganda about Rebif. That started my deep antipathy for Rebif, and I swore then and there that nothing would ever induce me to take it. And I still hold with that position. I don't care if God Himself comes down and tells me to use it, I will have to decline as politely as possible and pack my bags for hell.

The icing on the cake came in the form of a representative for Rebif. I liked her personally, I just hated what she was representing, and representing she did with gusto. One day, at a MS walk, I was talking to someone who was hoping to go on Rebif. I said how much I hated the interferons -- I had been on Avonex and didn't enjoy the experience -- and wasn't hip on doing them again (I didn't tell him about my grudge against Rebif). We were talking about the side effects, and I said how higher doses of interferons means a higher risk of neutralizing antibodies. He, all pompous and holier-that-thou, pooh poohed my statement with a, "Oh, I don't know about that." The rep came over and we asked her, she admitted that it was true, and I was big enough to not yell, "CHECK and MATE!" in his face. He lost all interest in continuing the conversation, and I lost all interest in having any more conversation with his pompous self.

The only Rebif I will touch is my Rebif pen, because I like the way it writes and the general public doesn't know what it is. They would probably think it was some medicine that stops bladder leakage at the cost of the rest of your organs. The day someone knows what it is and comments on it, is the day I throw it away and use a pen that doesn't write as well, but that is a sacrifice I am willing to make.


That "Brave" Woman

I had met this woman when I first started Tysabri, and she had just started too. I saw her years later, after I had gone off of Tysabri due to the higher risk of getting PML the longer you are on it. She asked me if I was still doing Tysabri, and I told her what I just wrote. She, still doing Tysabri, said, in a voice one would use to talk to a slow child, "I'm not scared of dying," like I was one of the cowering masses who live in fear of death, which I am not, death seems like blessed release to me. She was walking away, head held high like the superior person she is could not possibly be seen talking to a coward like me, when I told her that I am not afraid of dying, I'm afraid of living through PML and what it could do to me. She actually slowed her walking away, and got a frown on her face as she processed that answer. She lost all interest in ever talking to me again and still doesn't have too much to say to me whenever I see her. Maybe because I didn't have the proper awe for her and her blithe disregard for death? Maybe because I had a point and have blithe disregard for death, too? Who knows? And I have no intentions of having further conversations with her, not enjoying being talked down to. It actually gets my hackles up and doesn't cow me the way I feel like they are intending it to.


Even though I don't like holding grudges, these are 2 that I have no intentions of letting go, they having offended me to the marrow of my bones. It is rare for me to be that deeply offended, so I'm going to enjoy these grudges to the end of my days. Some baggage is worth carting around.

Announcements

I have a few announcements to make, then it is back to all those fun things you were doing before I interrupted you. I'm such a killjoy.

*I think I'm having an attack. The pieces are coming together, like some rotten puzzle I would rather throw out than put together. Or like unraveling a big cable knit MS sweater that someone keeps on knitting, and knitting, and knitting, and KNITTING! (Sorry, just watched Pee Wee's Big Adventure.) It would explain why I was so slumpy for so long. I get this feeling when I'm getting attack-y. Like a mild bout of depression mixed with an amazing amount of fatigue. I let it simmer on the couch until new or worsening of old symptoms develop. I have been so wiped out, with no corresponding activity to explain it, that I am having a hard time staying awake, and that is not me. I'm falling asleep by 6:30 pm, after taking a 2 hour nap in the afternoon, then going to bed and sleeping until 4 am. I should feel well rested. But I don't. I only feel like I need a nap. My legs feel thick and hard to control, and the worst of all, I'm having itchy spots that feel like I'm wearing wool on a hot summer day. They crawl and tingle and feel really gross. Adding this all up, I decided I was going to have to take one for the team and call my neurologist.

*I should have waited until today to call her, instead of yesterday. It was my lucky day! They had a cancellation and I could haul my happy arse downtown to see her! I had already hauled my happy arse in to see my pain doctor for my hug, and he gave me a muscle relaxer that is not as sedating, and turned out to be manna from heaven, so I had Sugarbowl drive me, being deep in the throes of manna from heaven. I talked to my neurologist's nurse, and here is the problem: I cannot tell any story that involves her without adding the important fact that she has the most thick, luxurious mustache ever seen on a woman. Sugarbowl asked me if she was married, but I have never been able to tear my eyes away from her glorious mustache to look at her hands, so I don't know. But who wouldn't want to marry such a woman?! I guess a man who can't grow a great mustache and would feel inferior to her, that's who. Anyhoo, I told her that I knew my neuro would want me to pee in a cup and give another vial of blood, even though I have never had anything wrong with me whenever I am having MS problems, but I suppose it gives her pleasure to tell me that I still have MS. And I was right, she did want more of my pee and blood.

*Going to give more of my bodily fluids, I walk up to the desk and tell the receptionist that I was there to pee in a cup and have blood taken. She told me that I needed to get back in the elevator, go down this long hall, get into another elevator and take it to the third floor to the lab. Being in pain and cranky, I didn't bother to read the sign on the wall that said "Adult Intensive Care." She thought it was great and said that she doesn't get to see people that are so responsive very often, so it was a nice change of pace. She talked for so long, I about gave my urine sample to her floor. Sugarbowl enjoyed it so much, she was still laughing about it by the time we got to the lab, which was down a long hall and up another elevator.

*Nothing new about my neuro. Same ol' same ol'. She pooh poohed me as always, and even though Sugarbowl said I was bitchy, I thought I was being nicer to her than usual. I let slide the whole, "last MRI didn't show any lesions," without going the rounds about the inaccuracy of spinal MRIs. Sugarbowl says that if I am so unhappy with my neuro, I should find a new one. I agree with that, and some days I swear I am going to do it, but I do enjoy my anger with my current neuro and would hate to give up that pleasure. Besides, I feel like if I don't call her on these things, she may never learn and keep subjecting other unsuspecting saps to her old school ideas about MS. I want to ask her if she has to do continuing education and suggest some reading materials for her if so, and some reading materials if not.

*The last and most important announcement is that in the doctor's office, waiting for the nurse to come back with my MRI appointment -- did I mention that she has the most thick, luxurious mustache ever seen on a woman? -- I announced to Sugarbowl that I was craving KFC because I needed to swim in a bucket of coleslaw. She being the best chauffeur and sister EVER, got KFC on the way home, so I got to swim in my bucket of coleslaw before falling asleep on the couch by 6:30. I'm still picking cabbage out of my hair. I am a happy gimp.

The Paradoxes Of MS

Right now I can think of 2 major paradoxes of MS. I'm sure there are more, but these are the 2 that are torturing me at the moment.

1. I'm always tired but I can never get any sleep. Sure, I sleep for about 5-6 hours a night, and sometimes I can squeeze in an hour nap, but more often I can't get any decent sleep. I probably wouldn't even get those 5-6 sub par hours of sleep at night if my night meds didn't knock me out. Even in the haze of my night drugs, I still get up 2-3 times to pee each night. I have cut down all liquids after 6 pm, but my bladder still wants me to get up to drain those 3 drops that it has produced in the 2 hours since my last bathroom visit. I wake up throughout the night and check the time to see how much sleep I've gotten since the last time I checked the clock. It's never as much as I had hoped to see. And lately, I have been getting up in the 3's instead of the 4's as I used to in the days of yore. I try and stay in bed until 4, but it is a struggle. One morning I spent 25 minutes messing with the dogs before I had to raise the white flag and get out of bed. In those 25 minutes I got the dogs so wound up by plucking hairs off their fluffy buns and trying to stick them up their noses, that it was get out of bed or risk being covered in stinky dog spit. I chose to get up with only 75% of my body covered in stinky dog spit. I didn't want the dogs to start plucking hairs off my fluffy buns and try to stick them up my nose. I can dish it out but I can't take it.

2. My MS Hug squeezes me so tight that the only way to get any relief is to wear something tighter. Across my back and chest, right where a bra strap goes, is a line of pain and tightness that is only made bearable by squeezing the sh*t out of it. I have been wearing my tightest cast iron sports bra to help ease the pain. It is so supportive that I could use a jackhammer all day and not get the slightest jiggle out of my unmentionables. Even now, I have an Ace bandage wrapped so tightly around my chest that I can't draw a deep breath, but if I don't wear it, I can't draw a deep breath from the pain and tightness from the hug. I have Sugarbowl and Princess beat on my back and rub it as hard as they can. The pure ecstasy from that makes me moan and groan like I'm in the deepest throes of passion -- not exactly something I want to do with my sister and niece. They are good sports about it and take turns so one can rest her arm while the other beats the crap out of me. Sometimes abuse feels sooooo good! Sugarbowl is the best when it comes to any MS related help I need. She has the arm support thing down just right. She understands that I need a strong arm that I grab, not grabbing my arm like my mom does. My mom grabs a hold of my arm and runs off, dragging me behind. Sugarbowl lets me take her arm and lets me set the pace. You would think that a woman who works in a nursing home would know better than to drag a gimp along, but she hasn't figured that out yet. Sugarbowl also has the beating of my back down to a science. She knows to work it across the line of pain with a combination of hard rubs and deep pounding of her fists. I was in so much pain the other day, but she had to go to work, and I wished I could afford to pay her to stay home and work me over like she was tenderizing meat. Alas, I could not afford to have her stay home so I wore a corset of Ace bandages all day, waiting for her to get back home and abuse me some more.

Like I said, these are the only 2 paradoxes that come to mind right now, only because they are the 2 that won't let me forget they exist. If you have others, please let me know. I'm always interested in others' sufferings, even though I feel like I'm running a huge risk by asking. I'm afraid that my body will decide that it needs to add those problems to my already impressive repertoire of pain and agony.

P.S. I am trying to put together another edition of Dear Blindbeard, so please send me any questions or comments you would like to have me respond to. Or any you would not like me to respond to; it's all the same to me.

Y. Bother

I'm going to change my name to that. After my SSA hearing, I think it is rather fitting. I would have written about it sooner, but the whole thing left me in a deep blue funk that I am still trying to claw my way out of. The next time I EVER have to go to any kind of SSA bowlsheet, I'm going to yell everything I have to say into the toilet and flush it all down, because it will have the same effect (is that the right effect/affect? I'm not sure, but I am sure that I don't really care right now.). After all the crap I had to say, all the questions I answered for her royal highness, all the "experts" throwing it their 2 cents -- regardless of whether it is true or not -- at the end of it all, the judge asked the vocational expert what a person who can stand and walk for 6 hours could do for a job. Why did I bother to talk at all?! I should have just asked them to tell me what my problems are, if any. And could they please tell me what my limitations are, again, if any. Dearest Judge, could you please tell me how it feels to live in this body? Please explain my fatigue to me, my pain, and ignore my gimping walk. I am breathlessly awaiting your answer, because living with it is nothing to what you have to say about it all. I left the courtroom feeling like I was wearing a neck brace and someone knocked a book off a table, and I whipped my head around to check it out, like in a TV show.

Did you know that the day after you get turned down for Disability (SSDI), you can file for SSI? If you no longer have the work credits for Disability, as I do not because this whole farce has taken so long, you can apply for SSI, which is for the poor saps like myself that no longer can apply for their full disability because they haven't worked X amount of years out of the last so many. Nobody told me this! I just found out about it earlier this year, when I reapplied and the whole mess got rolled into one huge mess. So if you get turned down, reapply IMMEDIATELY before the whole appeals process starts, so they don't get mushed together. The trick is to make sure they are separate. I am now impatiently awaiting my unfavorable decision so I can apply for SSI before filing my appeals, because I AM going to file an appeal because I hate them all and am not going to just shrivel up into a little ball of manure and go away. I am looking forward to what they come up with as a job I can still do. Marathon runner? Acrobat? Contortionist? Please make it better than a grocery bagger. A little creativity would be deeply appreciated.

Ugh! Other than all that fun, not much else has been going on. Well, nothing worth writing about anyway. Except maybe how now that it is getting colder and we are keeping the windows closed, the dogs seem to be gassier. Or a great story of how Sugarbowl sharted at work the other day and we have been singing the diarrhea song to her, but she can laugh at herself so she agrees with the whole "pants full of foam" part. Or even how the medium sized dog jumped on me in the yard yesterday and ripped a huge hole in my pants, showing off my unshaven legs to anyone who happened to be looking. Yeah, like I said, nothing interesting. Now I must go and get ready for my job as a marathon runner. Smell ya later.

A Rant Unrelated To Anything

I just had my most darling little dog fixed yesterday. When I had adopted him from the Humane Society he weighed 3 pounds and they told me that he would be lucky to hit 10 pounds. He weighed in at 12 pounds. As a devoted adopter of only unwanted animals, I find the Humane Society very irritating. I also find all those animal rescue groups annoying for the exact same reason: their assumption that no one knows how to treat animals correctly except themselves. They make you lie to adopt an animal. Too often they charge an outrageous amount for an animal that risks extinction if someone doesn't come along and want it. So many animals are put down -- too many -- that you would think they would make it a little easier to adopt. And those animal rescue groups? Forget about it! They want way way way too much money, often want you to sign a contract outlining the homemade meals you will feed the animal, and want to do home visits. I have successfully raised several pets, one to 16 and am currently providing a loving and safe home for an almost 10 year old dog with horrible seizures and a disposition that is getting more bitchy as the day progresses. I don't make their meals, but they are not exactly starving, especially as I usually share what's on my plate too. I do not work in an animal testing lab, or put my animals through rigorous SATs or the like. I have found that their paws do not have the dexterity to hold a pencil well enough to shade in the correct circles so they invariably fail. And I know they are smarter than that. Well, kinda. My dogs sleep in bed with me and the littlest one is tucked in my robe right now. I don't hit my pets, except a swat on the butt for the biggest dog when he tries to hump my male cat. (That cat has only a stub of a tail due to the cruelty of some kids breaking it and the last thing he needs is a big dog trying to make babies with him.) I'm glad the Humane Society is there and they provide an excellent service to those animals who need it, but do they have to be such pompous ass hats? Do they have to treat me like I have no idea how animals should be treated? Like I only want to grab the dog, race to my car and start abusing it? And those animal rescues that insist on a home visit? Really? Are you going to interview my dogs and cats and make sure I am worthy? I'm not much of a liar in general, but the Humane Society makes me lie. I don't bother with the animal rescue groups because the money they want for their animals could buy me a new car. And a luxury vacation. And even a new set of luggage for that vacation. I also object to a home visit. It's ridiculous and insulting. I may be wrong, but I'm pretty sure there is a huge population out there that do treat animals well and they don't all work at the Humane Society or run an animal rescue. I want an animal to love and rule me and my house, but I'm not willing to be finger printed or have a criminal check done on me to adopt your pet. So, yes, I will lie like the cheap rug I am and take this most darling little dog. Now you can go back to being pompous and self righteous, Humane Society.

The Worst Companion EVER!

To say something is the worst companion ever is saying a lot. Shopping with Princess is never fun. She is only interested in pointing out everything ugly she comes across. I notice the ugly stuff but I am able to move on to things that may be of interest. Not her. She has to constantly show me everything horrible she finds. It's not exactly a good way to find things that are not horrible for me to spend my $2 on. Even more annoying is going to the library with her. She goes, finds the book or two that she wants then comes and finds me to look over my shoulder at my list of books that I want and runs ahead of me to grab them for me. As a hardcore historical nonfiction geek, I usually look at the books in the same general area as the books I have on my list, so I don't appreciate someone grabbing just that one when I want to look at all the ones near it. She just wants to hurry me up; she is not trying to help me, just speed things up. She likes to keep up a constant stream of talk about how the books I read are so boring, why do I look at the ones near the one I have on my list, couldn't I just grab a few and race out of there, how much she wants to beat me over the head with a huge reference book and drag me out by my hair, etc. etc. She's a great companion when it's something she is interested in, which is only a very few things outside of the house, but nothing else.

Having just passed the 3 week mark of unending joy with my knee, I have had plenty of time to ponder how pain is the worst companion EVER! I know it is, but when you haven't had a recent bout of acute pain, you can forget just how unfun it is. Lying in bed, keeping my throbbing knee company because it couldn't sleep anymore, I was thinking about the different kinds of pain that like to keep me company from time to time. (It is so thoughtful, it never wants me to be alone.) While my knee is a deep burning throb, my trigeminal neuralgia is a stabbing screaming pain. My legs burn and ache at night, and the muscle spasms that my MS Hug give me are like a hot knife being drawn down my body. Around my left eye I have a dull ache that I usually try not to take any pain meds for because I take so many for everything else, but sometimes I have to raise the white flag. I get tingling electric shocks up my right side that feel so gross they make my hair stand on end where they go up into my scalp. Luckily I don't get that one as often.

Chronic pain can drain all and any fun out of life. My good humor packed a bag for Reno and left me without even a Dear John letter. I'm trying to be patient with everyone around me, but patience is very hard to find right now. Sometimes I can't think around the pain and just have to hold on until the pain meds catch up -- I try not to play catch up, but sometimes it comes up so fast I get to play that most not fun game. My little world has shrunk even smaller with all this fun, and I don't care because until this pain starts to abate, my bed and couch are where you will find me. Not that anyone wants to find me right now, and I can't blame them. I don't want to find me either.

Happy Anniversary To Me!

You know how in a new relationship you celebrate every milestone no matter how trivial? How you think about them all the time? No matter what is going on, they can pop into your head and drive every other thought out. Ah, the beauty of new relationships! Today is my 2 week anniversary with my hurt knee. Yes, it has been 2 glorious weeks of nonstop togetherness. My knee has been on my mind constantly, to the exclusion of every other thought. I think about it all day and without Lord Lortab I would fantasize about it all night.

I twisted my stupid knee getting into the tub. Nothing major at the time, but as the day went on it kept getting worse. The next morning I could not even put a toe down. I don't know how I made it to the back door to let the dogs out or got my coffee going, but those are 2 huge priorities in the morning so I hopped around and got it done. I figured I just sprained it, so I spent the next couple of days holding down the couch, giving myself freezer burn on that knee, and in a lewd position trying to keep that knee elevated. The only part of the RICE (Rest Ice Compression Elevate) treatment I was unable to do was compression. I can't stand even a blanket on it when it really starts to sing, so that was out. I finally raised the white flag and went to the doctor a week ago this last Friday. My guts were protesting so much OTC pain meds so I was also hoping to get a little higher end med in addition to finding out what in the hot heck hades hell was going on with my knee. My knee was already hurting but when that doctor, who I had no problem with up to this point, started messing with it I about came up off the exam table. Acorn says the only thing that was touching the table were my elbows. From that moment on, I have hated him and never want to look at his ugly (he wasn't really ugly) mug again, and have been pondering starting a smear campaign against him. He, not having to deal with the pain, told me to keep with the OTC meds, even though the recommended dose was not helping and I had been going over it -- he just told me not to do that -- because he is a diabolical servant of Satan. I was living on Sprite and crackers, in a tremendous amount of pain, busy cutting out words from magazines to glue together as a hate letter to send to that doctor, when I lost all my good humor and went to the E.R., after talking to his nurse and finding out he was out for the day, no doubt checking in with his lord and master Satan. They at the E.R. sympathized with me, after seeing my white knuckled grip on the chair, and gave me a prescription for Lortab. They are not on my hate letter mailing list, which is good, my magazines being cut to shreds and not wanting to go to the store to get more. I am seeing an orthopedic surgeon on Weds because the MRI showed fluid in my knee and God only knows what all, I don't speak Evil Bloody Hemorrhoid so I'm not sure what all the doctor spewed out.

Today I am going to spend time thinking of my not beloved, and pondering 2 weeks of togetherness. I really hate new relationships. I'm going to the store to buy more magazines now; my knee just got on my mailing list.

Calories And Strange Trees

*Update: Are those toads or frogs? I thought they were toads, but I could be wrong and they are some pseudo-toad-frog thing. Either way, I will now be accepting orders for seeds from my toad/frog tree.


I sprained my knee the other day. I was getting into the tub and nearly fell. Luckily (?) I caught myself before I could fall, but I twisted my knee in the process, which Acorn should be happy about because she didn't have to come help my naked arse up off the floor. It hurt, but it wasn't too horrible right away. As the day progressed it got worse and worse. By the time I went to bed it was really hurting but I didn't think too much of it. I woke up throughout the night from the throbbing and the next morning I couldn't put an ounce of weight on it. It was an ordeal just to make it to the bathroom and if it hadn't been 4 am I would have woken Acorn up to help me, but I knew she was going to have a long day of doing everything for me, so I let her sleep. While laid up I ate, in order, 4 donuts, 2 burritos, 2 pieces of pizza and a handful of Skittles. Ugh! I think I consumed my calories for the week with just the 4 donuts, never mind the rest of it. Yesterday I tried to eat a little less junk, but I did treat myself to another round of Skittles, polishing off the bag, so I may have to go to the store to get more because I'm worried that I may waste away just sitting on the couch not eating junk all day and not burning a single calorie. I'm bored stiff just sitting here, but when I was walking around, thanks to all the ibuprofen I ingested, my knee started hurting again, so it was back to the couch and moaning about my knee. I have been calling everyone I can think of to have long meaningful conversations and my little sister said that if I don't stop calling her she is going to press charges for harassment. I foresee another boring day today, because my knee is still sore, and more speed dialing everyone and having restraining orders taken out against me.

In my backyard, there is a tree that a bunch of toads are always on. Not just around the bottom, they actually climb up the tree and hang out up there. I don't get it. Why do they climb up that one tree, besides to make me ask questions? I've never seen toads in a tree before and am baffled why they do it. I'm sure one of you brilliant readers know the answer to this and will shed some light on this most perplexing situation for me. Until I know why, I am going to assume that I have a toad tree growing in my backyard and am going to start selling seeds from it, for others who want their own toad tree. Having a toad tree reminds me of the donut tree my neighbors had when I was growing up. The lady worked at a donut shop and brought home donuts and dumped them under the tree in her front yard. I'm not talking just a few donuts, I'm talking a pile that reached almost to my waist, and I'm a tall girl. That donut tree tortured us to no end. My mother is a health freak and we didn't have junk food in the house. Ever. We didn't even have sugar in the house for a long time, we used honey for sweetener, so to have a donut tree across the street was cruel and unusual punishment for us. Our dog would bring home donuts all the time and my little sister, who didn't get the nickname Sugarbowl for nothing, said she wanted to wrestle the donuts away from the dog, they looked so good. One of my friends said that we should hang pot roasts from one of our trees and ask our neighbors if they wanted to trade pot roast tree seeds for some of their donut tree seeds. I would love to have my own donut tree, but the calories! I think a toad tree might be a better tree for me, especially as I'm getting no exercise right now, but to have a donut tree. . . that is the stuff dreams are made of.