tag:blogger.com,1999:blog-2549590948850807878.post8949657328971128167..comments2023-11-05T06:11:01.162-06:00Comments on Blindbeard's Multiple Sclerosis Blog: TysabriUnknownnoreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2549590948850807878.post-15173626858671153142007-11-09T06:53:00.000-06:002007-11-09T06:53:00.000-06:00i'm going for infusion #4 today, and i don't know ...i'm going for infusion #4 today, and i don't know if it's doing anything or not. i don't feel any worse, but i don't feel any better. whether ty is slwong the progression, or it is slowing on it's own, who knows. i'm glad it is working for you, tho!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2549590948850807878.post-61686111348297333242007-11-08T18:53:00.000-06:002007-11-08T18:53:00.000-06:00Very interesting new twist: infusing earlier or l...Very interesting new twist: infusing earlier or later, depending on how the body uses. This needs to be followed up with my daughter's neurologist. I suppose if the infusee is not experiencing break-throughs on the 28/29 day cycle of dosages, one should leave well enough alone, but it's still of interest. Thanks for the information.<BR/><BR/>DebAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2549590948850807878.post-3432136074758803122007-11-08T18:22:00.000-06:002007-11-08T18:22:00.000-06:00I have had 14 infusions of Tysabri so far (not cou...I have had 14 infusions of Tysabri so far (not counting the one I had in early 2005).<BR/><BR/>My infusion Center will not infuse me again until the 28th day, although they have no problem waiting until the 29, 30, 31st day or even the following week.<BR/><BR/>On page 16 of the Tysabri Label, it states: "The recommended dose of TYSABRI® is 300 mg IV infusion every four weeks...".<BR/><BR/>I suppose that "recommended" and "required" can be interpreted as meaning two completely separate variations, or strict adherence thereto.<BR/><BR/>In any event, I'm so very happy for you that your MS is now stable, and you have received improvements.<BR/><BR/>If you are interested in reading my Tysabri experiences, you can go to:<BR/><A>http://lauren-livingwithms-aolcomlglbgl2003.blogspot.com/</A><BR/><BR/>I hope and pray that you continue to have wonderful experiences while on Tysabri, what's not to LOVE about this medication??? <BR/><BR/>All my best, Lauren :)Laurenhttps://www.blogger.com/profile/18373904711547103825noreply@blogger.comtag:blogger.com,1999:blog-2549590948850807878.post-77076261668404959332007-11-08T11:21:00.000-06:002007-11-08T11:21:00.000-06:00This is the first time I have heard of anyone on T...This is the first time I have heard of anyone on Tysabri being infused on other than a four week schedule. Does the "TOUCH" program allow such dosing? Could you expand on your dosing experience?<BR/><BR/>Sam in NYAnonymousnoreply@blogger.com