tag:blogger.com,1999:blog-2549590948850807878.post8592889967928387997..comments2023-11-05T06:11:01.162-06:00Comments on Blindbeard's Multiple Sclerosis Blog: What Is Wrong With Me?!Unknownnoreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2549590948850807878.post-32403518882306605972008-11-15T14:21:00.000-06:002008-11-15T14:21:00.000-06:00Feeling powerless is maddening. I know I can be m...Feeling powerless is maddening. I know I can be more positive when I feel better but feeling sick makes us feel like a vicitim and that's hard to get past. I hope going to the psych helps you out. Your purpose will still reveal itself, I have to trust that for you and for myself.Denver Refashionistahttps://www.blogger.com/profile/17681030016057155728noreply@blogger.comtag:blogger.com,1999:blog-2549590948850807878.post-9444929772141496402008-11-14T19:31:00.000-06:002008-11-14T19:31:00.000-06:00I'm pounding my feet with punkrockfairy, too.....a...I'm pounding my feet with punkrockfairy, too.....and I echo the sentiments of Linda and Lisa (as usual actually, 'cause they're right). <BR/>Hmmm...leather restraints....sorry, off track for a moment.<BR/>oh yeah...get mad if you want to. <BR/><BR/>S.Anonymoushttps://www.blogger.com/profile/08793047835261862513noreply@blogger.comtag:blogger.com,1999:blog-2549590948850807878.post-33637656453004008512008-11-14T15:14:00.000-06:002008-11-14T15:14:00.000-06:00My husband is annoyingly optimistic when I'm feeli...My husband is annoyingly optimistic when I'm feeling crappy about life and pissed at this disease for taking my opportunities away. He wants to to help me have a better attitude and I want to punch him in the face. Even though I know it wouldn't be much of a hit because I am a southpaw and that's the arm that's weak right now, plus I love him intensely and wouldn't want to risk screwing up his dimples. <BR/>I guess what I'm getting at is that it's not fair dammit! (Imagine full grown woman mid-tantrum on the floor.) I wanna be pissed when I'm pissed and not care about worrying my family, but I can't do it either. If you come up with some secret form of anger management that you can hide from your family, do me a favor, and share with the group.@whiskey.xray.yoga.zulu https://www.blogger.com/profile/13486715100955603014noreply@blogger.comtag:blogger.com,1999:blog-2549590948850807878.post-30878611686652382872008-11-14T15:11:00.000-06:002008-11-14T15:11:00.000-06:00BE ANGRY!!! This damned disease sucks! Does soun...BE ANGRY!!! This damned disease sucks! Does sound like a little bit of steroid magic would do you some good, but unfortunately I don't have the power to write that script for ya. <BR/><BR/>Sorry that neurontin is being a lousy friend. It works great for me and I'm taking 1800mg daily. Don't know if it's to blame for the obsessive sleepiness cause about 3-4 of my drugs all claim drowsiness as a lovely side effect.<BR/><BR/>What I can share is that I'll be joining those of us MSers who are doubling up on the antidepressants. Had a talk with my neuro nurse and admitted to the underlying dark current which has brewing for 3-4 months. Hopefully this will work.<BR/><BR/>Please vent all you need to and maybe Linda will indeed come out to Nebraska to strap you up.Lisa Emrichhttps://www.blogger.com/profile/10862232056342347990noreply@blogger.comtag:blogger.com,1999:blog-2549590948850807878.post-18252726911243619772008-11-14T11:53:00.000-06:002008-11-14T11:53:00.000-06:00Effing disease and inadequate meds...vent it all, ...Effing disease and inadequate meds...vent it all, girl. Neurontin mad me battier than a dark cave...drooling batty. There ARE other meds you could try for the TN pain (like Amitriptyline, Trileptal, Lyrica for starters) and "possibly" a round of steroids would do you some instant relief. There ARE also ways to treat your "steroid crazies" and keep you OUT of the loony bin if anyone cared to work with you and do so!!<BR/><BR/>Seriously...for once I wish I lived in Nebraska again. We'd work you through some steroids and you'd not be fearing "crazy" again. And besides, I HAVE my own set of leather restraints if needed. :-)<BR/><BR/>Linda D. in SeattleBRAINCHEESEhttps://www.blogger.com/profile/04478852688645497036noreply@blogger.comtag:blogger.com,1999:blog-2549590948850807878.post-31170578843998266412008-11-14T09:58:00.000-06:002008-11-14T09:58:00.000-06:00Even though our MS courses are different, there ar...Even though our MS courses are different, there are many similarities in what we're feeling. I was just discussing--- well, really fighting-- about this with Bill last night. I was having the "I'm so boring. My life is so boring. I don't know what to do with myself. I need some sort of focus, but what can I commit to with this damned MS?" discussion AGAIN. I vent about this every couple of months. And mid-relapse my focus on my purpose becomes more intense and I really question what the point of it all is.<BR/><BR/>I'm trying to achieve small dreams of my own. I want to go back to school. I want to adopt a young child. There has to be a focus and a source or sources of accomplishment, and I don't think non-MSers understand this because they are usually stressed out and trying to simplify their lives. I hate the untapped potential and trying to find ways to shine amidst all of the MS crap.<BR/><BR/>I'm so sorry that you're having such problems with TN. I had one really bad time with it at the end of a relapse. Heating pads and ice packs didn't work. Neurontin made me so loopy, so I know. <BR/><BR/>And the anger is completely understandable. You'd be inhuman if you didn't have it. Good luck with the shrink.Jenhttps://www.blogger.com/profile/17421022098477662697noreply@blogger.com